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Baby with 'Worst Disease You've Never Heard Of' Dies

"Today I write with the heaviest of hearts. Today I write the post that I prayed and prayed would never come," Quinn Rosalie Seymour's father Marc Seymour wrote on caringbridge.org.

Quinn Rosalie Seymour, a Stow baby just shy of being 8-months-old, lost a battle with a rare genetic disorder that causes blistering in and outside of the body — Junctional Epidermolysis Bullosa — Herlitz (EB), according to a post written on Caringbridge.org by her father

Here is an excerpt from Stow father Marc Seymour's post:

"There is nothing I can say to express how PROUD I am to have been able to care for this living angel.  She has taught all of us many lessons about life and LOVE.  She has taught us all that no matter how big the challenge - there is always time to SMILE:)"

Read his entire message here

 

Pete Punwani April 09, 2012 at 01:06 AM
My thoughts and prayers are with this family. Wow, what a show of strength and sadness :(
Kim Polatas April 09, 2012 at 01:11 AM
what a beautiful baby and family. My prayers for strength and mercy during this painful time are with you. My deepest condolences.
Becky Slam April 09, 2012 at 01:44 AM
So terribly sad that this beautiful little baby has passed. May she rest in God's presence, and may the family be comforted with the knowledge she is with Him.
Jack Kelly April 09, 2012 at 02:25 AM
Thank you for sharing such a great pic of Baby Quinn. So very sorry for your loss. I saw this story a few months ago on Fox 8, and teared up reading the story. No more pain and suffering for Baby Quinn. Just peace. RIP.
Meg Griffin April 09, 2012 at 12:58 PM
She taught us so much about faith and courage in her short life. My thoughts and prayers are with her family, and all who supported them so much.
YellowBird OnWing April 10, 2012 at 05:35 PM
Baby Quinn and the love of her family will be with me for years to come. God sent us an Angel in another infant to remind us of His Love. Baby Quinn was escorted home to the Father by a Legion of Angels. A Prayer Warrior, Pooler, Georgia
Tom Stephan April 11, 2012 at 02:36 PM
When Father Rosing added Baby Quinn's name to our list of petitions at Easter Sunday Mass, my heart broke a little and my eyes filled with tears. She was a beautiful angel on earth, and now in heaven. Deepest sympathy to her beautiful family.

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